Sunday, March 22, 2009

Why not me? Why not now?

I have been through a lot in my life. I have a bunch of diagnoses for my medical problems, there is not a system in my body that does not have at least one diagnosis, most have multiple diagnoses. I am getting ready for a week chock full of medical appointments, only 4 appointments at the current moment but there is a need for another appointment or two.

Last week I was feeling very broken after I lost a job opportunity because of institutional policy regarding hiring a patient as an employee, that was not very clear when I applied for a "quick hire" position.

One of my newer self diagnosis that will be put to the test on monday when I see the new neurologist, is cluster headache/migraine. It will be great fun to see if he agrees with my self assesment. I also need to see if he would be willing to evaluate me for acquired Chiari malformatioin because of the bizarre symptoms that I have been having puts me highly suspicious that something else is going on.

Today I was supposed to go to church with my mom. But I have a major problem with our current church, I don't seem to fit anywhere and the critics of myself and my lifestyle are too much for me to deal with. No one seems to realize that I am fighting my own battle and I dont need the criticism of my fellow body of believers who are ment to support each other through problems and not to cause more grief

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