Sometimes I just dont understand. This is going to be first about a little boy, who is not very little who met God today. He had cancer but didnt die of the cancer he died of veno occulsive disease, which affects the liver primarily. The hospital that he was at did not fight to get the one drug that has really shown promise at treating the condition, so he got it too late...that is the doubt that has to be going through the parents mind right now, the doctors didnt fight for him to get it it was family and friends and total strangers who got the drug for this adorable boy.
Now for me my pain management has been poor for the past 2 weeks I called last week to get an urgent appointment to get a med change and additional medication for my migraines, I am actually starting to have a female cycle again and that is making me more miserable, 2+ years without one makes you kinda forget what a cycle is like. But the earliest appointment that I could get was tomorrow at 7:30am but I had to take the tuesday appointment for the same time. I will be asking for a prescription for fiorcet and for prescription strength motrin since even with the hospital discount 800 mg of motrin three times a day gets expensive. and will also see about going up on my lyrica.
this week is going to be expensive, I will have to pay out around $50 for balances that I already have at the 2 doctors that I will be seeing thankfully they should be paid at 100% since I have finally met the out of pocket maximum for the year. the only doctors that I have that wont be paid at 100% are my OU physicians associated ones since they are not completely preffered providers.
Sunday, May 31, 2009
Monday, May 4, 2009
After Surgery
Sorry it has taken me this long to post an update, but life has been a bit crazy trying to recover from this surgery. It seems that each time he has to go back in it takes me longer to recover, pain and nausea wise.
I was in a sum total of 3 rooms 4 if you count the emergency room bed. Its a little freaky when you realize that they think you are sick enough to need the capabilities of a trauma room. And mannitol is not a fun drug it made my arm hurt like the dickens. I was admitted to intermediate care because of my high heart rate and pulse rate, the care in IMC sucked to put it nicely. went from that room to surgery, and spent 8 hours in recovery waiting on a room in ICU, also because of my high heart rate, blood pressure, and to make sure that I got the great care that I deserve...my surgeon has made a promise to keep me comfortable if/when he has to go in again, I got great care there the only frustrating thing was that I did not have a television that got all of the channels. I was transferred from ICU down to the women's center a.k.a. pregnant ladies floor, and spent 1 night there and was discharged on thursday
I am now in the process of trying to lower my intake of pain meds enough to have more functional hours with the least amount of pain especially since I have to make what I have last until the middle of the month when I can get in to see pain management, I supppose if needed neurosurgery might refill my pain medications just once but I dont want to abuse that privelege.
Right now I am on the phone with my primary care physician's office trying to track down the referral to a cardiologist that I need to see because of my heart rate and blood pressure being so out of whack. The one that mom suggested doesnt handle simple issues normally like the tachycardia and blood pressure being so out of whack, he does more of full blown heart failure, which praise the Lord I dont have that problem right now.
Mindy
I was in a sum total of 3 rooms 4 if you count the emergency room bed. Its a little freaky when you realize that they think you are sick enough to need the capabilities of a trauma room. And mannitol is not a fun drug it made my arm hurt like the dickens. I was admitted to intermediate care because of my high heart rate and pulse rate, the care in IMC sucked to put it nicely. went from that room to surgery, and spent 8 hours in recovery waiting on a room in ICU, also because of my high heart rate, blood pressure, and to make sure that I got the great care that I deserve...my surgeon has made a promise to keep me comfortable if/when he has to go in again, I got great care there the only frustrating thing was that I did not have a television that got all of the channels. I was transferred from ICU down to the women's center a.k.a. pregnant ladies floor, and spent 1 night there and was discharged on thursday
I am now in the process of trying to lower my intake of pain meds enough to have more functional hours with the least amount of pain especially since I have to make what I have last until the middle of the month when I can get in to see pain management, I supppose if needed neurosurgery might refill my pain medications just once but I dont want to abuse that privelege.
Right now I am on the phone with my primary care physician's office trying to track down the referral to a cardiologist that I need to see because of my heart rate and blood pressure being so out of whack. The one that mom suggested doesnt handle simple issues normally like the tachycardia and blood pressure being so out of whack, he does more of full blown heart failure, which praise the Lord I dont have that problem right now.
Mindy
Subscribe to:
Posts (Atom)
