Tomorrow is the day for me becoming even more of a bionic woman, with the filter and the fact that I have a shunt to drain the fluid off my brain. I don't have a time for the procedure yet, will probably not get it till tomorrow sometime. I am not even sure if I will be NPO after midnight tonight because the doctor assured me that I will get some medication to help me relax and get to the point that I am more comfortable.
Right now I am waiting for my care partner to get finished with her vitals and come back because I would like to go for a little stroll and need some help to do so. Also we are going to get a good popscile or two out of the staff fridge that my mom hid there since the ones that are in the patient fridge have melted and re-frozen which makes them not taste so hot.
And since my fluid intake is down and I love popsciles that is an easy way for me to get more fluids in and avoid being hooked up to an IV in addition to telemetry which isn't a portable device it is like an IV pump with a bunch more cords and oxygen to keep me from de-satting which I do often because my lungs aint working the greatest due to the blood clots.
thanks for the prayers and good thoughts, brain surgery doesnt really freak me out but this is, I am trying to rest in the knowledge that God is in control and will walk me through this latest trial but sheessh I sometimes wish that God didnt think so highly of me....you know the God won't give you more than you can handle.
Mindy
Sunday, June 14, 2009
Saturday, June 13, 2009
Change of Plans Sorta
There is a slight change of plans I wont be going home on Monday, they will be placeing a special kind of filter to try and be on the safe side to block the ability of blood clots to get to my lungs. And to be able to place the filter they had to stop the coumadin and will restart it afterward the placement of the filter.
I am not that thrilled that I will be cut on the side of my neck and be awake throughout the procedure at least according to how the procedure was explained to me because it doesnt sound that comfortable to put it simply.
again sorry it is so short it is hard to type with my glow finger and IV spot.
I am not that thrilled that I will be cut on the side of my neck and be awake throughout the procedure at least according to how the procedure was explained to me because it doesnt sound that comfortable to put it simply.
again sorry it is so short it is hard to type with my glow finger and IV spot.
Friday, June 12, 2009
P is for Pulmonary Emboli
From Wikipedia
Pulmonary embolism (PE) is a blockage of the pulmonary artery or one of its branches, usually occurring when a deep vein thrombus (blood clot from a vein) becomes dislodged from its site of formation and travels, or embolizes, to the arterial blood supply of one of the lungs. This process is termed thromboembolism.
Common symptoms include difficulty breathing, chest pain on inspiration, and palpitations. Clinical signs include low blood oxygen saturation (hypoxia), rapid breathing (tachypnea), and rapid heart rate (tachycardia). Severe cases of untreated PE can lead to collapse, circulatory instability, and sudden death.
Diagnosis is based on these clinical findings in combination with laboratory tests and imaging studies. While the gold standard for diagnosis is the finding of a clot on pulmonary angiography, CT pulmonary angiography is the most commonly used imaging modality today.
Treatment is typically with anticoagulant medication, including heparin and warfarin. Severe cases may require thrombolysis with drugs such as tissue plasminogen activator (tPA) or may require surgical intervention via pulmonary thrombectomy.
this is my second go around with PEs and it looks like there is not going to be a smoking gun as to the cause just like they couldnt figure out a cause the first time.
treatment will be an injectable blood thinner for a day or two and then getting my coumadin level, coumadin is the life long medication that will hopefully with Gods grace from happening again.
this is going to be it for a while because of where my IV access is, on the inside of my wrist.
Pulmonary embolism (PE) is a blockage of the pulmonary artery or one of its branches, usually occurring when a deep vein thrombus (blood clot from a vein) becomes dislodged from its site of formation and travels, or embolizes, to the arterial blood supply of one of the lungs. This process is termed thromboembolism.
Common symptoms include difficulty breathing, chest pain on inspiration, and palpitations. Clinical signs include low blood oxygen saturation (hypoxia), rapid breathing (tachypnea), and rapid heart rate (tachycardia). Severe cases of untreated PE can lead to collapse, circulatory instability, and sudden death.
Diagnosis is based on these clinical findings in combination with laboratory tests and imaging studies. While the gold standard for diagnosis is the finding of a clot on pulmonary angiography, CT pulmonary angiography is the most commonly used imaging modality today.
Treatment is typically with anticoagulant medication, including heparin and warfarin. Severe cases may require thrombolysis with drugs such as tissue plasminogen activator (tPA) or may require surgical intervention via pulmonary thrombectomy.
this is my second go around with PEs and it looks like there is not going to be a smoking gun as to the cause just like they couldnt figure out a cause the first time.
treatment will be an injectable blood thinner for a day or two and then getting my coumadin level, coumadin is the life long medication that will hopefully with Gods grace from happening again.
this is going to be it for a while because of where my IV access is, on the inside of my wrist.
Monday, June 1, 2009
Two posts in one week...so far
Tomorrow I see the pain management doctor for an urgent appointment, the urgent appointment only took a week to get. It doesnt help that the appointment is at 730am in the morning, especially when you are either not getting to sleep or waking up in pain or waking up to have to go to the restroom multiple times per night. I have my alarm clock set for 615 I took my shower tonight to be able to get a few extra zzzz.
We are going to try and tackle multiple issues at this appointment. Going up on my Lyrica which should help with the nerve pain and possibly some of the extra muscle pain like it does with fibromyaglia patients. Getting a prescription for prescription strength motrin. Getting something for my migraines, fiorcet or midrin would prefer the fiorcet but will take anything that can help right now. A prescription sleep aid there is only so far and so long melatonin will take you and I am at that point. And adjusting the quanity of my actual pain meds, with so many migraines this month cycle for my pain meds they have been drained.
It doesnt help that the nerve ablation is starting to wear off, I think that that is part of my problem too, they were only meant to last six to 12 months and I had them done in january and february so it is about time.
I am frustrated and tired, I was supposed to see my manipulative medicine doctor today, but waiting for 30 minutes past my appointment time when the doctors office has a policy that if you are 10 minutes past your appointment time you have to reschedule the appointment. that fact made me very angry that I have to respect their time so diligently but they cant seem to respect mine, and this is not the first time that she has been more than 20 minutes late, she has been 20 minutes late or more every appointment that I have had. My first appointment was almost 6 hours long for the total time that I spent in the office, I actually took nearly an hour long nap in the waiting room because no one was ready and bothered to call me back...thank goodness for the good thing of an iPod. I swear the only way that I survive doctors appointments and the boys in the car is the iPod
We are going to try and tackle multiple issues at this appointment. Going up on my Lyrica which should help with the nerve pain and possibly some of the extra muscle pain like it does with fibromyaglia patients. Getting a prescription for prescription strength motrin. Getting something for my migraines, fiorcet or midrin would prefer the fiorcet but will take anything that can help right now. A prescription sleep aid there is only so far and so long melatonin will take you and I am at that point. And adjusting the quanity of my actual pain meds, with so many migraines this month cycle for my pain meds they have been drained.
It doesnt help that the nerve ablation is starting to wear off, I think that that is part of my problem too, they were only meant to last six to 12 months and I had them done in january and february so it is about time.
I am frustrated and tired, I was supposed to see my manipulative medicine doctor today, but waiting for 30 minutes past my appointment time when the doctors office has a policy that if you are 10 minutes past your appointment time you have to reschedule the appointment. that fact made me very angry that I have to respect their time so diligently but they cant seem to respect mine, and this is not the first time that she has been more than 20 minutes late, she has been 20 minutes late or more every appointment that I have had. My first appointment was almost 6 hours long for the total time that I spent in the office, I actually took nearly an hour long nap in the waiting room because no one was ready and bothered to call me back...thank goodness for the good thing of an iPod. I swear the only way that I survive doctors appointments and the boys in the car is the iPod
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