I probably have the 915 surgery slot, the nurse said that they were trying to come and get me just a few minutes ago.
Mindy
Tuesday, April 28, 2009
Not Good News
I was right, yesterday at the neuro opthomologist I got the worst case scenerio. He walked in and after the normal plesantries his first question was have you been having headaches, I said yes but they havent been my normal high pressure headache. they have been more of a migraine.
He asked about vision changes and I said yes that it had even been going completely black but that was more recent in the last few days.
He said your eyes are the worst I have ever seen them, I asked are you sure. He said your visual field has changed, not for the good, your basic eye exam has changed and you need to go directly to the emergency room your shunt has failed and aint working.
I made the trip to the er in record time for rush hour and the rain. they took me back very quickly and got ahold of my neurosurgeon in fast time. I was direct admited to intermediate care, step down from ICU (intensive care unit), because of my blood pressure and pulse.
I am waiting on the good PA to make rounds, at least I think I will be seeing the PA might get the good doctor who knows. And change my pain meds to something stronger because I have yet to sleep thanks to the pain, and tell me the game plan for today.
I know todays plans include surgery but I am not sure what time will post again when I know for sure.
Melinda
He asked about vision changes and I said yes that it had even been going completely black but that was more recent in the last few days.
He said your eyes are the worst I have ever seen them, I asked are you sure. He said your visual field has changed, not for the good, your basic eye exam has changed and you need to go directly to the emergency room your shunt has failed and aint working.
I made the trip to the er in record time for rush hour and the rain. they took me back very quickly and got ahold of my neurosurgeon in fast time. I was direct admited to intermediate care, step down from ICU (intensive care unit), because of my blood pressure and pulse.
I am waiting on the good PA to make rounds, at least I think I will be seeing the PA might get the good doctor who knows. And change my pain meds to something stronger because I have yet to sleep thanks to the pain, and tell me the game plan for today.
I know todays plans include surgery but I am not sure what time will post again when I know for sure.
Melinda
Sunday, April 26, 2009
Nervous
Nervous sums up my mood tonight. I am nervous about the doctors appointments that I have this week, nervous about what they are going to say, nervous about what changes I am going to have to do to continue in my state of health, nervous about driving downtown to Pull A Part to finish what we started back in december.
Tomorrow I see neuro opthomology. I love my neuro optho but with the vision changes that I have had in the past month I am fairly sure that the news is not going to be the best. Worst case scenerio my papilledema is back and my cataract is growing, best case my glasses prescription needs to be changed.
Tuesday I am supposed to see pain management I think it is on tuesday, I will call tomorrow to double check. This will be refills of current medications, and seeing about adding something else to take for my migraines....the medication that I have right now I can only get 9 tablets per month and I am averaging between 12-15 migraine type headaches.
Wednesday I go back to the manipulative medicine doctor for another session. I have partially gotten her to do list done, made 1 of the 2 appointments that she wants me to do. I have gotten on the schedule for the TMJ expert at the local university to see if there is anything that he can do to help my jaw which in turn would reduce my headaches, the tension ones primarily.
Friday I go back to the urologist to get the results of my urodynamics test. I know that I flunked it in at least 2 areas. I am not sure what the plan of action will be but I surely would appreciate one.
Monday of next week I see the cardiologist, another new patient appointment to try and deal with the fainting.
Tomorrow I see neuro opthomology. I love my neuro optho but with the vision changes that I have had in the past month I am fairly sure that the news is not going to be the best. Worst case scenerio my papilledema is back and my cataract is growing, best case my glasses prescription needs to be changed.
Tuesday I am supposed to see pain management I think it is on tuesday, I will call tomorrow to double check. This will be refills of current medications, and seeing about adding something else to take for my migraines....the medication that I have right now I can only get 9 tablets per month and I am averaging between 12-15 migraine type headaches.
Wednesday I go back to the manipulative medicine doctor for another session. I have partially gotten her to do list done, made 1 of the 2 appointments that she wants me to do. I have gotten on the schedule for the TMJ expert at the local university to see if there is anything that he can do to help my jaw which in turn would reduce my headaches, the tension ones primarily.
Friday I go back to the urologist to get the results of my urodynamics test. I know that I flunked it in at least 2 areas. I am not sure what the plan of action will be but I surely would appreciate one.
Monday of next week I see the cardiologist, another new patient appointment to try and deal with the fainting.
Saturday, April 25, 2009
I am trying to do this whole blog thing at least once a week...it seems to help my mood and emotions if I take the time to put the words to my computer and get it out.
This week I work this weekend, yuck at least one day is down and I only have one more to go and then I am off until wed thurs and no weekend duty woohoo!!! I should really be asleep right now but I dozed and rested too much today so the meds that normally take care of my pain and knock me out arent doing the trick.
I have neuro opthomology on monday that is the first of the appointments, I have manipulative medicine doctor one day this week I think the 29th, and I have pain management on the 28th and I see the urologist on friday 5/1 to get the plan of action with my bladder issues...which there are more problems that I wasnt aware of but such is life. I see the cardiologist on the 4th and the TMJ dentist on the 15th. And somehow I am supposed to fit in a trip to an orthotic specialist to get molded for a new set of orthotics.
Now here is where my heart is heavy, one of the kids that I encourage as part of the COLEs Foundation Prayer team got news that his labwork showed 2 blasts in the smear, it is too early to know for sure if he is relapsing but right now their hearts are heavy with the thought of relapsing less than a month and a half off of treatment for his leukemia. The doctors are hoping that the bone marrow was just spitting out a few weird cells due to the viruses that he had been dealing with. They will redo the lab work in 2 weeks
This week I work this weekend, yuck at least one day is down and I only have one more to go and then I am off until wed thurs and no weekend duty woohoo!!! I should really be asleep right now but I dozed and rested too much today so the meds that normally take care of my pain and knock me out arent doing the trick.
I have neuro opthomology on monday that is the first of the appointments, I have manipulative medicine doctor one day this week I think the 29th, and I have pain management on the 28th and I see the urologist on friday 5/1 to get the plan of action with my bladder issues...which there are more problems that I wasnt aware of but such is life. I see the cardiologist on the 4th and the TMJ dentist on the 15th. And somehow I am supposed to fit in a trip to an orthotic specialist to get molded for a new set of orthotics.
Now here is where my heart is heavy, one of the kids that I encourage as part of the COLEs Foundation Prayer team got news that his labwork showed 2 blasts in the smear, it is too early to know for sure if he is relapsing but right now their hearts are heavy with the thought of relapsing less than a month and a half off of treatment for his leukemia. The doctors are hoping that the bone marrow was just spitting out a few weird cells due to the viruses that he had been dealing with. They will redo the lab work in 2 weeks
Sunday, April 19, 2009
Week ahead
This week is going to be a bit busy, I have got 2 appointments with different doctors offices, actually to be technically correct 3 since one is a two fer the price of one trip. Urodynamics and go to the urologist afterwards, then GI the next day. I work Monday and tuesday and will get paid on tuesday I think for the week. I am not too sure if I work this weekend or not, honestly I hope that I dont work this weekend, I need time to clean up my room and fold laundry and make everything ok for my aunt sharon coming.
Next week I see my neuro opthomologist, ready to get my lecture there for not calling with my visual symptoms that I have been working with and functioning with well sort of. I will see my manipulative medicine doctor next week also along with pain management
Another kid got diagnosed with Intracranial Hypertension this last week and I am trying my best to help the family understand what is going on and they are just as relieved to have a name to call what all the symptoms that their child is/have been experiencing.
Next week I see my neuro opthomologist, ready to get my lecture there for not calling with my visual symptoms that I have been working with and functioning with well sort of. I will see my manipulative medicine doctor next week also along with pain management
Another kid got diagnosed with Intracranial Hypertension this last week and I am trying my best to help the family understand what is going on and they are just as relieved to have a name to call what all the symptoms that their child is/have been experiencing.
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